Sunday, February 7, 2010

AS: Finally a pattern emerges

I've not written much about CD's Asperger's so far, because it has just been this big scary set of freaky behaviours that has left me just lurching from one crisis to the next. It's very hard to step back and look at what is really going on when you are constantly fire-fighting. Since his diagnosis in May 2009, I have been reading and researching and following all the wonderfully insightful autie blogs, and very slowly I've started to make sense of the things he does.

Then on Sunday I had a Eureka moment: finally a pattern is emerging. After a horrible week, we've had a good weekend, and I can identify the exact second his mood changed, and now I think I know why. Rewind to last Sunday when he had a new friend to play for the afternoon. The friend introduced CD to a new game. Nothing unusual in that. But CD decided that he wanted to add it to his collection. I've kept him away from the shops since Christmas, so I felt that maybe it was time for me to let him spend some of his money. But I made all the usual noises, trying to defer the purchase, insisting on reading the reviews and checking the suitability. Finally I suggested that we buy a used version on-line, and I said I'd sort it out when I had time. He kept mentioning how much he wanted it during the week, and between times, his behaviour got worse and worse. I finally sat down and placed the order on Saturday. CD gave me a big hug and said 'Thanks' and immediately the meltdowns and the whinging stopped.
I suddenly realised that this was exactly what had happened in the run-up to Christmas. From the beginning of October he started stressing about what to put on his Christmas list to Santa, which had to be posted on 1st November. Then a revised version went in the post early in December. He kept saying that he "couldn't wait 'till Christmas". I'm now beginning to think that this was literally true. It was just too stressful for him to wait. Throughout November and December his behaviour deteriorated. He bought 2 DS games in December, but that didn't help either. Christmas Eve he could not sleep, so neither could I. I nearly lost it, I just remember crying on the stairs at about 4am, as I had no idea how we were going to get through Christmas Day. Then on Christmas morning it was like the clouds parted - after opening his presents, suddenly all was well in CD's world. I'm also worried that this is the behaviour of an addict - the stress while he is waiting for his 'fix' and then the relief when he gets what he wants, which gradually wears off and stops completely when he identifies the next 'want'.

Finally I think I can put a label on one of his major problems - he cannot delay gratification. If he wants something, it has to be NOW. So I've identified one of the problems, the next step is to learn how to deal with it.


Footnote:
He was back to being difficult this morning, and I think it's because the I bought the game on-line, so now he is stressing about which day it is going to arrive. I won't make that mistake again!

11 comments:

  1. Wow, that's a powerful insight to have. He is the most literal person I know as well so when we answer something loose like "soon" it probably drives him crazy. I remember after lunch we had to point out when we had finished eating we could do it. The second the last mouthful was in my mouth it was like "now can we do it?" Next step is to find a way to manage this valuable insight that makes life easier for both of you.

    Maybe try when he asks for something is to be direct and pin point a day exactly when it will happen. Try and gauge how long he can wait for something. With Junior (I know it is not the same) he has no patience and time is something liquid to him. So I never tell him we are going somewhere eg on a plane or car journey until that day as he gets too excited otherwise.

    Would it help with CD to make him a special calendar (on line with pictures of things he loves) and everyday he marks off a day and he can then count when something is about to happen? Would that make it more real and signify the passing of time in a physical way for him? I don't know just a suggestion. x

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  2. I don't do delayed gratification all that well myself so I empathise with CD. Even at my ripe old age I still get over excited and impatient, so I understand the overloaded feeling too. I will follow this with interest and when you figure out how to deal with it let me know, I will use the same technique for my kids:) I hope he enjoys the game when it arrives:) Jen.

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  3. hi hun

    i feel your pain so so much, as i have this with kyra, she gets so worked up and anxious that she melts down

    i have to explain everything in great detail, now she marks an x on the calander and does a count down, advent calenders are so cool for this but the ones you put your own nick nack in, i bought a material one and put odd bits and pieces in, this made her day and made it all more exciting

    i know some witll think im nuts but i do this also as a count down, evry day i put something in a hand made material envalobe, it could be a pack of jellies, chocolate bar, new parer, eraser bla bla and then she ticks each day off calander and presto, shes ready for big day woohooo

    as i said, what works for one might not work for another but its worth a shot at least xx

    oh and kyra used to shake with temper like a withdrawn heroin addict hehehehe but shes just nuts lol xx

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  4. figuring out the cause of the behaviour is often harder than fixing it. you will just need to start a programme rewarding him for his patience. easier said than done i know but at least you know the root of it.
    I love them eurika moments, not enough of them :)
    Great blog and well done you
    xx

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  5. hi
    sounds like my son also, for years his behaviour was off the wall around christmas and my mother in law always remarked on how kids just get excited but i always knew it was more than that... like you said it the waiting. i find we go from waiting for one thing in the post then he gets it then he starts to obsess about the next one and i am guilty of facilitating him in this. we had eleven years with no asperger label its hard for us to change our behaviour with him i suppose. excellent post,

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  6. Hate to be seen promoting iPhone but I have found the calendar function invaluable with Boo. He hijacks the mac and types in all the forthcoming events and then it syncs with my phone so he can check it whenever he wants. One day he will have his own phone so I can fit my appointments around his movie release dates (Cinematic and DVD are noted)
    The timer is good for shorter term activities, we can set an event alarm that will reassure him that the activity WILL happen.

    As you know I travel around the world with Boo and do various transfers through airports and setting the times and reminders really helped with anxiety related behaviours. I just need to have the discipline to do it - which is much easier with the phone, than it is when you have to write it out.

    Keep looking under the iceberg. Often it is the act of investigating the 85% that creates a behaviour that keeps you calm and in control of your reactions. xx

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  7. I am your newest follower and I am so glad that I found your blog! My 8 year old autistic son is kind of a "right now" kind of guy but he also gets excited when he knows that something is coming in the mail that we ordered online. What I do is make it a ritual, as exciting as one can be checking the mail each day, to go to the mailbox and if it is not there we have a treat instead. Something that he really likes I give to him so that there is some instant gratification after all. I hope that makes sense. Usually, I reserve M&M's for special occassions such as that and he gets a thrill out of having some after we check the mail.

    Just an idea. I wish I had a whole bunch to give you but maybe things will work out for you both. It sounds to me that you are a loving and devoted mother so I think that you are doing the best that you can do so, try to not stress over that part.

    I look forward to getting to know you and CD through reading your blog. I am Lora Hawkins Aspiotis if you would like to add me as a friend on facebook, that is unless we already are....I don't think so because I have never seen your blog before. I also have a special page for Single Moms Raising Autistic Boys. Look it up on Facebook and join us! I try to put lots of useful information on there and it is a great way to meet other single moms who have a lot in common with you.

    Hugs !!!!!

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  8. P.S. Check out my blog too if you have a moment. I have some great information on it too. The latest is a series of videos about Temple Grandin, they really give a lot of insight on what it is like to be on the spectrum: all the sensory issues, coping with social issues, what it has been like growing up autistic etc... I think that you might like them. I learned a lot from watching them. Every little bit that we can learn helps.

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  9. Wow, I felt really touched reading all the comments here. Thank you all so much! Lora thanks for the follow and I will try and find you in a sec. I discovered that timers worked a couple of years ago, but I will certainly look more at calendars and treats. And yes I am seriously considering buying an iPhone. I'm finding lots of ways to justify it now!

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  10. Great post and a brilliant Blog. I haven't posted before but have been quietly reading. Congratulations on your recent discovery. I too share my life with a child on the Spectrum and I agree totally with Claire finding the cause is the difficult bit.

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  11. Oh yeah, Blue Skies....I still have that issue with WiiBoy!! Although he can wait just a little longer now...still gives out about it though!

    While you're waiting for your iphone draw a calendar and let him tick off the days! Better if you're going out to buy it though! You can push him a bit by saying you can have it in 3 days....next time 5 days ...next time 7 etc, etc! Oh....and you can also make it a reinforcer....you can have it at the end of 3 days if good behaviour ;)) Specify the behaviour you want and give him a star for each day. 3 Stars.+3 days = shop!! xx Jazzy

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