My back is in bits and it's partly my fault. I'm too optimistic at times and still think I'm indestructible. I don't want other carers of children with disabilities to make the mistakes that I made. So this was the theme - based on a previous post - that I chose for a guest blog for SWAN UK (Syndromes Without A Name), a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. If your child is undiagnosed you will find great support at SWAN and they have a thriving Facebook page as well.
Thank you SWAN UK for this opportunity.