My back is in bits and it's partly my fault. I'm too optimistic at times and still think I'm indestructible. I don't want other carers of children with disabilities to make the mistakes that I made. So this was the theme - based on a previous post - that I chose for a guest blog for SWAN UK (Syndromes Without A Name), a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. If your child is undiagnosed you will find great support at SWAN and they have a thriving Facebook page as well.
Thank you SWAN UK for this opportunity.
Oh god I really know about back problems too! You do soldier on because unless you can give a good enough reason, no one will help until an emergency situation arises. It's not right, it's not fair and it totally sucks.
ReplyDeleteMy hips are the worse for wear these day, feel like a little old lady!
Hi - came over to you from Lyndylou's blog. I've known her for years - we are both part of a great support group.
ReplyDeleteLuckily, i don't have any lifting with Peter, but i do have problems with my neck and shoulder - result of a car crash i was in years ago. Ouch is all i can say!!!
I'm going to add you to my list of blogs. BTW - looked at the blog bout the car - what about some go faster stripes or groovy daisys to make iot a bit, err - different?!?!?!?
@lyndylou - I know, and your wait for equipment is just unforgiveable.
ReplyDelete@Julie - Hello :) Lovely to meet you and thanks so much for following :)