Another trip to Wales and another stage in my Dad's illness. Each time we visit, there are changes.
I've put my feelings in a box marked deal with later. Right now it's the only way that I can do all the things that need to be done each day.
But there are positives. He's back in the hospice, and he loves it there. The wonderful staff and the care they provide mean that he now copes much better with his illness. Cancer may be cruel but it is no longer in control of him. Thanks to the hospice, he is now living his life again, day by day.
He is not the only person who is in a better place. There are big changes in aspie boy too. He is not feeling so angry and we are all happier as a result : including him. This latest trip could have been such a nightmare. I could not prepare his daily schedules as I never knew what was going to happen. Yet he helped me to remain calm. Complaints were few, even though hospices are not the most exciting of places for ten year old boys. Instead he made the most of the time with his Grandad....
I've put my feelings in a box marked deal with later. Right now it's the only way that I can do all the things that need to be done each day.
But there are positives. He's back in the hospice, and he loves it there. The wonderful staff and the care they provide mean that he now copes much better with his illness. Cancer may be cruel but it is no longer in control of him. Thanks to the hospice, he is now living his life again, day by day.
He is not the only person who is in a better place. There are big changes in aspie boy too. He is not feeling so angry and we are all happier as a result : including him. This latest trip could have been such a nightmare. I could not prepare his daily schedules as I never knew what was going to happen. Yet he helped me to remain calm. Complaints were few, even though hospices are not the most exciting of places for ten year old boys. Instead he made the most of the time with his Grandad....
NB: I have his permission to publish this.
That is such a nice photo.
ReplyDeleteI'm glad you all are in a better place. Sure makes living life a lot easier, huh? It always amazes me how when one of us are off the rest of us suffer. I'm so glad you had a good time.
Glad to read you are all in a better place and you son can enjoy time with his grandad.
ReplyDeleteLovely to hear that your Dad is enjoying his life again. I know exactly what you mean about the "deal with it later" box. My poor old Dad has even lost sight and hearing now and it is easy to think that he has gone already. But every so often his spirit shines through. Loads of good vibes coming your way! X
ReplyDeleteSending so much love to you. I recently spent some time in a hospice and was so comforted and so admired the staff there, aren't they such amazing places? xxxx
ReplyDeleteSo glad you are getting another opportunity to spend some time together, I know you are measuring these moments. That's a great photo!
ReplyDeleteSusan G
I love that photo, glad to hear your father is well looked after in the hospice and that cancer is not in control of him. Thinking of you. xx
ReplyDeleteI don't know hoe you're dealing with it all. Glad your dad is able to cope better now and my heart is literally singing with your Aspie Boy news :-)
ReplyDeleteFriend of mine going through her cancer surgery tomorrow so I really get the cancer is cruel' thing. It really is...
Stay strong
((xx)) Jazzy
Sorry, that previous comment is from me....forget I was logged in on iPads account!
ReplyDeletexx Jazzy
What a lovely photo of Granddad and Grandson. I'm glad things are a bit calmer for you all atm.
ReplyDeleteHeartwarming!
ReplyDeleteBut I do worry about that box of yours - filling-up to overflowing.
Line from a movie: "Keep your friends close!" Can you name it?
Is your family looking forward to the release of the final movie on dvd on Friday? We are!
Barbara
Thinking of you C.
ReplyDeleteI didn't realise your Dad was so ill. The photo is lovely :)
God bless you all, with much love.
That's a lovely picture of Aspie boy and his Grandad and one I'm sure you will treasure in years to come. Big hugs xxx
ReplyDeleteLovely to hear about your Dad and how he's doing and great he's enjoying his time in the hospice.
ReplyDeleteGlad you had a good trip to Wales.
xx
p.s. That photo is lovely!
What a lovely photo. There is no relationship like the one you have with your grandparent. I am so glad that your Dad is happy at the hospice, they are such lovely places and they focus on the here and now which is good.
ReplyDeleteThinking of you X
What a lovely picture. I envy aspie boy for this closeness with his grandad - my boys never met one of theirs, and the other one has advanced dementia. Hope things remain calm for you, xxx.
ReplyDeleteThank you for all your lovely comments. My Dad is quite poorly tonight and it would be great if you keep him in your thoughts xx
ReplyDelete@Lizbeth - I love it :)
@Deb - It was special x
@Foxglove lane - So sorry to hear about your Dad, it's heartbreaking x
@auntiegwen - I'd heard so much good stuff about hospices, but it's only now I've spent time in one that I realise it's all true xxxx
@snowdrops - It says so much
@Andra - thank you x
@Jazzygal - I hope that your friend does really well xx
@Midlife Single Mum - thank you x
@Barbara - we are, but we have to wait until December 2nd. I hope you're enjoying it this evening.
@Irishminx - thank you x
@Helen - yes it now looks like I may treasure it even more than I realised when I wrote this xxx
@SAHMlovingit - thank you x
@lyndylou - thank you, I'm thinking of you and your son too x
@Truf - that's very hard, for all of you, thank you for your lovely comment xxx
What a lovely photo and nice to make memories while you can.
ReplyDeleteI think - on some level - our kids know when we need them to - maybe not behave, but be good and go with us as oppose to against us. That may sound crazy, i know, but i hop this good time continues for you all
@Julie - I agree: when things are really bad for me, my kids usually come through and support me xx
ReplyDeleteHi,
ReplyDeleteI know we have not met but in some way we must be friends. I wish I could offer some strength or help, that photo is truely heartwarming, I hope you father is doing ok and think of you both often.
Take care
Jane x
What a lovely photo & so glad your son is doing well, which is just what you need during this difficult time x
ReplyDeleteWhat a wonderful photo. I can relate to the 'feelings to deal with later' mind set. Think we need to do that sometimes just to get through. My dad was diagnosed with lung cancer just before I fell pregnant with my eldest and died 4 weeks to the day after he was born. We named him after my dad. It makes me so sad that they never got to know each other. Cancer is an awful disease but I am glad to hear your dad is starting to live his life again. I wish you all the strength and courage you will need. Thinking of you all. X x
ReplyDelete@northernmum - Thank you. I think many of my favourite bloggers would be friends in real life if we lived closer - those I have met have been just as amazing as I expected x
ReplyDelete@Jane Gregory - Me too x
@LittleMamma - That is so sad for you ((hugs))
I love this photo. I'm sure you will cherish it.
ReplyDeleteM2Mx
@marketingtomilk - Thank you so much for dropping by and commenting x
ReplyDelete