The first day of the holidays #rant

With the morning came rain, lashings of it.  But after being stuck in the house with an anxious aspie boy for large chunks of the weekend, I was not going to let a rain shower deluge stop my plans.  You see my boy claimed to be worried about the water sports activity at his summer camp today.  And I am too soft and too afraid of meltdowns to simply tell him he's going.  The compromise was that I agreed to go into the school and explain how he feels about wrinkly fingers and stuff like that, and ask them to accommodate his needs.  I also needed a walk, and Smiley needed to get out.  Solution?  Aspie boy went on the bus to school and I walked there with Smiley.  Rain was not part of my plans, especially since the buggy got broken.

Well the good news is that I got the buggy back.

The bad news is that Smiley has grown again and it really is a bit small now.  I think it will be for emergencies only from now on, sadly.

Cue tearing of hair out in handfuls.

Even I could see that she is now more comfortable in her moulded seat prescribed by the occupational therapy team.  But I have persuaded them that the current wheelchair is simply too big, for the car and for the house, sooo it has been agreed that a new, smaller frame will be ordered to support the seat.  And I plan to ensure that it is as practical and buggy-like as possible, with a rainhood and other accessories, taken from her current buggy.  Now all I have to do is wait.

But in the meantime it hasn't stopped raining.  So this is what I tried today.

It took more than an hour to walk to the school and back, and by the time we got home Smiley was completely soaked.  In the buggy she would have been bone dry.  She did giggle all the way home though, and it has been a warm day, so I don't feel too guilty...

When we got back I toileted Smiley and changed all her clothes, bagged the nappy and took it out to the bin....only to discover that the maggots were back :( And it's only been 1 1/2 weeks since the last bin lift. So instead of more fun, or summer camp, Smiley had to watch videos all afternoon while I emptied and scrubbed out the bin and then myself.  Topping off a great start to the holidays there was an incident later with constipation and floor that needed cleaning, say no more I think.  Looking on the bright side I got lots of exercise and fresh air and halted a maggot invasion - for today at least.

Can the holidays get any better? I really hope so!