Sunday, July 8, 2012

How do I cope?

** Repetition warning: if you're a regular reader, a lot of this will be very familiar...**

It's not just me, others have noticed that the lives of so many bloggers are far from average.  They are living with challenges such as serious illness, supersize families, grief, domestic violence, special needs, and these are often the impetus to start a blog.  And so it was for twin mum Rebecca English who blogs at Here Come The Girls.

'Since having the twins the question I’m asked most frequently is “how do you cope?”', she says, and now Rebecca is asking other bloggers the same question.  In fact she's asking several questions, and here are my answers:

1. What is it about your life which has made someone ask how do you cope?

I'm a separated lone parent of three wonderful children.  One adult, one teenager with severe cerebral palsy and an undiagnosed disorder, and an 11 year old boy with asperger's syndrome.  Home is Dublin, but I have no family support here as they all live in Wales.  I was out of work, but now at last I have a job, although that brings its own challenges.  Throw in the loss of my parents and fairly relentless health problems, and sometimes it all seems just too much for one person.

2. What is the best thing about the situation?

There's many good things, and it would be hard to name just one.   Maybe all the friends and amazing people that I've met through special needs.   

3. What is the hardest thing?

That varies from day to day.  The biggest problem today, is the biggest problem today.  It might be behaviour, lack of time, illness, tiredness, something breaking, bad news, no-one to ask or no-one to tell.

4. What gets you through the day?

You'd expect me to say coffee, children, chocolate, wine and the internet perhaps?  They're my treats, my rewards.  What gets me through the days is pig-headed stubbornness and determination.  I am not about to let any challenge ruin my life.   

Then there's the great example set by my parents: My Mum, who was fit and fabulous until her final illness, and my Dad who had the energy of someone 20 years younger and never stopped being positive, even in his final days.  I have a tradition to carry on, you know!

5. What would you change if you could?

I would like more awareness and tolerance for disabilities and additional needs.  I want people to understand that these challenges can happen to anyone, and they should have compassion for those affected.  They deserve to enjoy a fulfilling life too, and with a little help, everyone can make some contribution to society, even if it's just by smiling and making people happy.

6. What piece of advice would you give to someone finding themselves in your situation?

Never ever give up hope.  Everything will pass, things can always get better and you will find help, often in unexpected places.  

Written in support of the blog carnival: A Mile in my Shoes  

mile

17 comments:

  1. You are wonderful, you know that yes?

    ReplyDelete
  2. I know I've said it often but you really are my heroine. I love your positive outlook, even though I know you cannot wear it 24/7 and that there are times when you also have to just sit down and cry. Lots of love xxx

    ReplyDelete
  3. I know I've said it often but you really are my heroine. I love your positive outlook, even though I know you cannot wear it 24/7 and that there are times when you also have to just sit down and cry. Lots of love xxx

    ReplyDelete
  4. You are so inspiring C (still so angry you didn't get through in the MADs on that vote!). You know I love you and love your blog and your final words there are just amazing xx

    ReplyDelete
  5. Fantastically inspiring. Thank you for sharing the gift of your positive attitude with us all. Love it. Vix x

    ReplyDelete
  6. You are just too fabulous for words. Lovely post, Blue Sky... and I am off to check out 'Walk a Mile in my Shoes'

    ReplyDelete
  7. You're an inspiration - and I know you'd probably shy away from that word but you really are!

    ReplyDelete
  8. a great post and further insight into your day to day. i totally agree with the "the biggest problem today, is the biggest problem today" - the hardest times are difficult to put your finger on, to know exactly what happened when and why it happened. thanks for this post and yes, i'm off to "a mile in my shoes"
    x

    ReplyDelete
  9. I too am annoyed you didn't get through on the Inspiring MADS! You definitely are an inspiration and I really don't know how you do such a brilliant job. It's pretty amazing and you do deserve recognition, rather than the sympathy you mentioned a few posts ago.

    I feel guilty sometimes that I read your blog but don't have any of the issues that you and many of your followers have. I have of course come across autism and other conditions through teaching, but hadn't before considered the rewarding life that someone born with disability can lead. I'd only really considered the challenges.

    I definitely feel educated.

    Doh, long comment. Sorry! :)

    ReplyDelete
  10. I too am annoyed you didn't get through on the Inspiring MADS! You definitely are an inspiration and I really don't know how you do such a brilliant job. It's pretty amazing and you do deserve recognition, rather than the sympathy you mentioned a few posts ago.

    I feel guilty sometimes that I read your blog but don't have any of the issues that you and many of your followers have. I have of course come across autism and other conditions through teaching, but hadn't before considered the rewarding life that someone born with disability can lead. I'd only really considered the challenges.

    I definitely feel educated.

    Doh, long comment. Sorry! :)

    ReplyDelete
  11. And it posted twice, double doh!

    ReplyDelete
  12. @everyone - I don't know how to answer all your lovely comments at all!

    I don't set out to write 'inspiring' posts, it's more like blogging-as-therapy, and I've always found that saying or writing positive things has an actual effect on how I feel, whereas moaning often makes me feel worse. But of course as you know sometimes I blog just to get something difficult out of my system!

    And @Beadzoid, it's lovely to get three comments from you :)

    ReplyDelete
  13. Lovely positive post Blue Sky and I have to agree with the other commenters, I don't get why you haven't got through to the blogging awards. Deb

    ReplyDelete
  14. Such an amazing post. You might not set out to be inspriring but you are. Don't worry about blogging awards - I'm sure it's lovely to win but it's pretty clear your writing touches people's and really means someone to them.

    Thanks for linking up such a wonderful post.

    ReplyDelete
  15. I love your bloodymindedness and can see how it helps you survive. Think I might take a leaf out of your book and try not to feel so defeated so often. You are amazing.

    ReplyDelete
  16. @Deb - you're very kind, thank you x

    @Rebecca English - Thank you for the carnival x

    @Netbuddy - Wow, thanks :)

    @Older Single Mum - You don't sound defeated, I hope you don't feel that way too often x

    ReplyDelete