It all depends on your definition of "getting up". Mine means getting showered, dressed and breakfasted. And that is not really happening at weekends this summer. I'm in danger of becoming Dublin's newest pyjama girl, only with less riding of buses.
You see when Smiley was little I could quickly change and dress her, lift her out of bed and into her buggy, and give her a hot chocolate to break her fast while I did a bit of exercise and had a shower. No longer. I can't lift her, and the hot chocolates have had to go as I need to keep her weight down. And now I have aspie boy and his little quirks to manage too.
So a typical Sunday morning goes something like this: At 6.30 am I give up the two hour battle to get my son to go back to sleep. We go downstairs. If you're new here you need to know that he is 11, but has Asperger's Syndrome.
He is feeling guilty and so makes his own hot chocolate. There's only a small mess. Some lessons are clearly getting through.
I put the water on and make some strong coffee and go on-line for 20 minutes or so, part work, part social.
Just as I'm draining the coffee dregs I hear Smiley calling me. She can't tell me exactly what she wants, but I assume it's a nappy change, and breakfast. The usual routine. I get her dressed as well. We eat breakfast together - it saves time, and then I settle her in front of a video while I have a second coffee and do some work.
I put a black wash on. Then go upstairs and find that my favourite black cardigan never got as far as the laundry basket. I must have been channeling my inner teenager and abandoned it on the floor last night.
Oops its now 9.30 so it's time to give my son his 5 minute warning : The rule is that he has to get dressed and eat breakfast before 10 in the holidays, as part of his daily timetable.
Toileting, cleaning the carpet for Smiley, chicken in the oven, going upstairs to the toilet with aspie boy, back down again to help Smiley choose a video.
And on and on and on, every time I head for the bathroom, there's something else to sort. Delighted there are no callers!
Then the phone goes.
Then I discover that Smiley has a sticky neck so I get out the cotton wool balls and find there's only two left so you dig out the shopping list and realise there's a few more things that need to be added.
I admire the latest Pokemon evolutions - all 20 of them...
And suddenly it's midday.
The day after I wrote this was a weekday so my home help arrived at 6.40 am to help get Smiley up for the day - it's the first summer I've said yes to this service. She is here for just 45 minutes, but the difference it makes is enormous. By lunchtime I had done 2 hours work, watched a bit of Olympics with the kids, Smiley had been in her walker, aspie boy on the trampoline. It's been the same on other weekdays, with lots of outings to see friends and places visited. So different from last summer, when the furthest we went most days was to the local Tesco express, and then no earlier than 3.30pm. My son had lots of meltdowns, but I got to bank sleep for the rest of the year.
But who needs to sleep anyway? I wouldn't mind so much if all was well with aspie boy, but it's not. He thinks that he is sick, and getting worse every day. Yesterday his anxiety was so great and his meltdown so bad that took him to the friendliest local pharmacist - they all know us round here - and begged for a few minutes in the private consultation room. And she was very good and speaking to someone with 'medical training' seemed to help. Earlier I'd explained to my son why we were not going to ring our GP's doorbell until he answered...
I'd also suggested going to the children's hospital, which he refused. I'm tempted to ask if they would take me in instead. I'll wear pyjamas and eat Cheerios and play Lego Batman if I have to, just give me a break. If I could make that happen, I wouldn't be getting up at lunchtime, oh no! I won't be getting up at all.

Does it help to say that September is almost here - just another three weeks to go! Hang in there. xxx
ReplyDeleteOh we love pjs days but it still means getting up when its still dark! I think by the time my kids will be able to get thier own breakfasts i wont be able to sleep in! Plus the whole CP thing kind of makes for a really messy earing challenge! lovely to find your blog via Ellen and Max xxx
ReplyDeleteOh I understand! So glad you are getting the help-even if it is only 45 minutes...amazing what one can do in that time isn't it? Sorry about the anxiety issue-we have gone through this...if you'd like to know about it-please message me on fb-I'd be happy to share if it would help. :)
ReplyDeleteWonderful Post! I can relate! Love your humor! I found you on the Love That Max Special needs Link up. It's been nice meeting you. I am #28, just below you on the list. I invite you to check my blog out!
ReplyDeleteFor the last 10 weeks is completely different for me. Weekdays I'm up at 3:45 a.m. and during the weekends I try to get some sleep, but then J needs to be up at 6 every day throught whole week. Here and there I try to compensate my sleep and his with me sleeping in the weekend's afternoons... Crazy days...
ReplyDelete@Midlife Singlemum - It does and thank you for your support xxx
ReplyDelete@Big brother, Little sister - That's the thing, and if my daughter feeds herself things get very messy here too! xxx
@kathleen - Anxiety seems to be so common in kids on the spectrum, I'd love to message you later :)
@Sylvia Philips - Glad it entertained you and didn;t just come across as a moan :) And I will of course pop over, when I have a sec :)
@Petra Rovere - Your weeks sounds very tough indeed, I hope it gets better for you soon xx
Admiring Pokemon evolutions - that says all you need to know (practically!) about parenting a certain kind of boy at a certain kind of age with Aspergers. It could be worse - mine has abandoned Pokemon in favour of Risk (I hate Risk!). So sorry he is so worried about his health - that rang a few bells for me, actually. I have to make a real effort to remind myself that if they're that worried about their health then there is something going on for them, even if there's nothing actually physically the matter.
ReplyDeleteThe day you head to the shops in your pyjamas is the day I'll really worry about you!! (says me who did a jet-lagged school drop in mine!) I'm glad you've taken the home help for August and I really hope Aspie Boy's anxieties lessen :-)
ReplyDeletexx Jazzy
The day you head to the shops in your pyjamas is the day I'll really worry about you!! (says me who did a jet-lagged school drop in mine!) I'm glad you've taken the home help for August and I really hope Aspie Boy's anxieties lessen :-)
ReplyDeletexx Jazzy
I'm so glad that 45 minutes of help makes such a big difference to your day. Sorry to hear that Aspie boy is still anxious about health issues.
ReplyDeleteI've got a blog post going up some time tonight and now I am wishing I'd reworded it as I sound like I'm moaning about lack of time.
xx
@JuliesMum - Yes perhaps it does and no Ihaven't hear of Risk - yet - and perhaps I don't want to! Seriously though I think that is very good advice that if they are worried then there is SOMETHING going on for them. Thank you x
ReplyDelete@Jazzygal - Yep, shopping in pyjamas is not really me :) xx
Your writing always draws me in, I just love your style. Ended up reading right through a lot of posts I missed on hols. Delighted you have the bit of support in the mornings now too, hope you can keep that up.
ReplyDeleteIn case anyone is listening (editors etc) your blog would make a fantastic newspaper column a stark contrast to most people's early mornings and a reminder of the real world.....X
@Foxglove Lane - Thanks for your lovely comments: and I would say the exact same about your photographs x
ReplyDeleteGlad to hear some help is making a difference, although it still seems like you have no break at all! Glad your pharmacist could help with the 'sick' issue - am sure that's something I can look forward to - just about to blog about how my girl wanted me to take her soft toy to hospital tonight! She was serious!
ReplyDelete@Steph - Thanks for commenting, and am wondering if your girls wants a 'dolls' hospital or a real one...guess I'd better pop over to yours and find out :)
ReplyDelete