Sunday, September 23, 2012

So you think I have aspergers?

Because some people do.

And this is where the evidence starts: I look at that sentence and start to worry.  Is it okay to type that?  Is the expression 'some people' acceptable?  To me it is simply a statement of fact, but I am well aware that what I say and write is often over interpreted.  That layers of meaning are added that I did not intend.  Perhaps this is why I love reading books but couldn't see the point of English Literature classes!

I've always felt a bit different, I've always struggled to fit in, but I assumed that this was normal.  I knew very little about Asperger's Syndrome when my son was diagnosed, and I certainly did not recognise myself, nor sometimes my son, in the recommended books.

But then this test started flying around Facebook.  It was designed for adults to indicate if they have autistic traits.  You can try it yourself here:

http://www.aspergerstestsite.com/75/autism-spectrum-quotient-aq-test/#.UF7UChzB9eU

I've taken the test a couple of times, and answered the questions in a very conservative way, but my score is consistently around 29.  Three points higher and the results suggest I should seek 'professional medical advice'.  What?  I was shocked.  Not just by my score, but by how some of my friends got scores below 10.  How was that possible?  I had thought that almost  everyone was like me!


I have more evidence, but if you take aspergers and autism very seriously, you may want to look away now:

I had several very serious interests as a child: coin collecting, bird watching, house design and more.  But perhaps that was because we had no TV?

I learned the capitals of every country in the world.  For fun.

I love boxes and lever arch folders.  They mean order.  Even toys were always boxed as far as possible.  And I have all household bills and correspondence for the past 20 years carefully filed so I can check stuff if necessary.  That does happen, honest!

I dislike the smell of perfume and aftershave.  In fact as far as possible everything has to be unscented!

I never leave home without lip salve and hand cream...I hate the feeling of dry hands and dry lips..

I bored a whole class in primary school once with a long winded demonstration of origami which the teacher had to bring to a halt before everyone fell asleep.

Preferred reading: children's books, science fiction, fantasy.  On TV I've no interest in Coronation Street but love Dr Who.

Discipline and direction make me angry and annoyed, unless it's work-related, and I'm being paid.

I was rubbish at ball sports, I couldn't see the ball without my glasses or if the sun was out, I couldn't catch it and if it came anywhere near me, I ducked!

Then I became self absorbed and self centred teenager who saw herself as a collection of faults.  But is that so unusual?  I didn't really grow out of that stage, so blogging is perfect therapy for me.

But I worked in PR for years I hear you cry?  Ah but I was a back office worker, wheeled out for the occasional meeting and pitch but rarely asked to attend events.  I have a history of hiding in the ladies toilet rather than facing the challenge of networking with a bunch of confident strangers.   Yet I don't mind public speaking about a subject that interests me.  

So you think I have Asperger's? My friends seem to accept me just the way I am, so perhaps it doesn't matter.

(It does matter to my son: his label is the gateway to services, information, help and support)

NB: This post was based on notes jotted down over many months and pulled together in my head while I washed my hair and typed up while I slowly fed my daughter her breakfast, in case anyone is wondering why I am moaning so much about being tired, having no free time and yet still blogging! 

30 comments:

  1. Brave and thought-provoking. So many of modern life's "isms" lie along a long drawn out continuum. The only dividers: broad strokes of a psychologist's pen...

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  2. I thought you were talking about me for a minute

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  3. I have not taken that test but I certainly sympathize with many of the things you mention above...

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  4. According to this list I'm halfway there to Aspergers. I bet everyone is though.

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  5. Obviously as I've never met you I wouldn't know, but online tests are never a good way of diagnosing Asperger's. I didn't score particularly highly on any of them although I would have done as a child. I was diagnosed by a psychologist using a standardised test and it involved a lot of input from my mother who remembered the details from childhood a lot better than I do. Many of the tests are too heavily influenced by Baron-Cohen's ideas and he is not very attuned to how women are affected by the condition.

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  6. Thank you for some very interesting comments: I am not sure how to respond to most of them...

    @Alan Lavender - I completely agree about continuums

    @liveotherwise - No I wouldn't do that x

    @Þorgerður - I think many parents in our situation do

    @Midlife Singlmum - Half way is where most people would be I think

    @Matthew Smith - Thank you, I know you are far more knowledgeable in this area than me. I certainly agree about women and I have heard it said that many women with aspergers just learn to compensate and that makes a lot of sense to me

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  7. I took the test - 18, though I could have gained a point or two more with questions that I was on the fence about that I know indicate tendencies.

    Knew I wasn't going to be though - almost too sensitive to unspoken communication and 'vibes' - yet strangely prone to saying the wrong thing-(and English Lit was my best subject!), but like you I exclusively preferred Dr Who, Star Trek, any Sci-fic/fantasy/horror etc (still do).

    It was interesting to take the test and I I really enjoyed your post x

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  8. oh and p.s., 19 (with an ASD daughter). Is that good or bad?!

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  9. 15. And like someone before me said... My score could be higher if i wouldn't knew that some questions/ answers lead you too. I love SciFi and particulary Dr.Who and I love reading books and of course - work p..s me off if it is not paid... ;o). Don't worry we are on the same boat... Just a little bit strange... and much too tired. xxx

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  10. 25 for me. Interesting post and quiz.

    Thanks for sharing

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  11. interesting post, and a question I think most of us have thought about at some time. I score highly on any test I've seen like this, I know I'm different, I know I probably do have Asperger's (And OCD) and I've always had it. Only recently so many things have made sense to me. I won't be seeking any advice or intervention though, I think if I can get to 46 without any then what's the point.

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  12. Thank you for all the new comments and I'm glad this post was of so much interest :)

    @lisadom Grace App - :)

    @Beadzoid - Oh I'm horribly prone to saying the wrong thing!

    @Suburbia - Me too!

    @Stephs Two Girls - Oh good :)

    @Stephs Two Girls - No score is good or bad, 19 is within the range where most people would be :)

    @Petra Rovere - xxx

    @Sarah - Glad you found it interesting

    @Anne Stone - That's my thinking too really

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  13. We're always teasing each other at home about which one of us passed on the Asperger's genes - my husband is convinced it's him, but I think it's me. We both score high on this sort of test (which I suppose means, at least, that we're well suited as a couple!). My dad is clearly "not normal", but too old for a diagnosis, our son has a diagnosis of Aspergers, our daughter was assessed as borderline, scoring highly on two axes out of three. We've decided that Aspergers must be normal for us.

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  14. @JuliesMum - I think Aspergers traits at least are pretty normal in my family too!

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  15. Brillian post, I have been thinking of writing a similar one for my 10yr old son, look at peoples opinions.
    I did the test from his perspective and scored......37!! I think the dr. appointment I keep putting off may need to be sorted.
    By the way I have an (almost) 5yr old that is diagnosed with ASD and related difficulties x

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  16. @Joanne Henley - Thanks so much for your comment and I'd so glad you found it interesting x

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  17. Thankyou for writing this. I've been wondering about writing a post about me being possible an aspergers girl. I can't deny it; I have obvious autistic traits and sensory issues. Even my family say I'm a like lot my son and my husband describes me as being on 'planet Deb'. Not sure what to do about it at the moment but one thing is for sure I will write about me and aspergers one day. Deb xx

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  18. Ps my score is 29 as well. Deb xx

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  19. @Deb - I love the idea of 'Planet Deb' that's pretty cool, I think! Please do write about it as I would be very interested to read your take xx

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  20. hahaha....I scored 32! Love this post. I'm off with my autie son to line up trains XXX

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  21. @Jean - ha ha - I'll go and line up cookery books in height order so xxx

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  22. 13.. may be reading the social stuff wrong though!

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  23. 13.. may be reading the social stuff wrong though!

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  24. @popsie - It's hard to do the test in an unbiased way I think!

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  25. 13. could be misreading the social stuff though, thats the problems with those tests. can identify with the discipline and anger stuff I also hated sports and pe at school. spent five years saying "I forgot my gear"!! found it confusing

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  26. The best online test is the Aspie Quiz http://rdos.net/eng/Aspie-quiz.php

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    1. Thank you for this information, I have checked it out and it certainly seems to be highly regarded.

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