Thursday, October 25, 2012

I'm on his side, and he's on my side

At least, that's the theory.

We're still trying to sort out the details.  Like the bedtime routine, where my aspie boy says that he is afraid to go to sleep unless I am in the room.  I have been trying to escape for months.   The slow retreat did not work, nor did keeping him up late.  In fact it ended in disaster earlier this week when my back went into spasm following a sudden move after sitting still and silent for almost an hour.  Even he recognised that something had to change.  During the bright safe daylight hours he thought that he could go to sleep on his own.  But once the light faded his night fears came back.  So we agreed on another idea.  A really good one.  He's still staying downstairs with me until late, but then we're both going to sit in his room to read for a while.  He has the book chosen - a Roald Dahl - and so far this means that he is getting to sleep much faster.  And that's a start.

Did you notice that I wrote 'we agreed on'?  I've been thinking about why I do what I do, and then don't do what other people tell me to do.  As the parent of a child with aspergers, I get a lot of parenting advice, but often it doesn't sit well with me.  And I was trying to work out why, and what sort of parent I am.  And then I wondered about other people and what sort of parents they are, and I came up with four different types.  Do you recognise yourself?  Or have I missed out any categories?

...The authoritarian parent tells the child what to do.
...The consensus parent negotiates with the children, and agrees a plan of action.
...The laissez-faire parent lets their children do whatever they want.
...The middle-of-the-road parent mixes up all the other styles.

You don't need me to tell you that I am a consensus parent most of the time.  Some people call me a push-over - I struggle with parenting plans that involve harsh discipline, or the imposition of rules and routines, and I find some child-rearing ideas scary and creepy.

Consensus parenting means that I always assume that my children are doing their best.  I like to think that we work together as a team, that we're on the same side.  I'm the kind of mum who says, "if you help me clear the kitchen, then we'll have time to go to the park".  This worked with Angel - even during the teenage years - but not so well with my son.

 

I've had to add some new ingredients to the parenting mix: patience and calmness.  Oh I had them before, but I didn't have to force them.  Now it seems that I do.

This morning he wanted to go up to the attic before school to get something 'important'.  Foolishly, I suggested that he took a shower first.  His voice started to rise and I could hear the panic setting in.

"But Mum, I might not have time to get it then!"

Alarm bells went off in my head.  What I wanted to do was 'make' him prioritise the shower over the game, as it's taken so long to get to this point.  But then he would just have a meltdown.  So I took some deep breaths and counted.  We went up to the attic together, and then he had his shower.

What makes it all even harder is that the latest thinking is that children with autism are highly tuned in to emotions, so not only should you sound calm, you have to FORCE yourself to be calm inside too.  Performing emotional somersaults in the process.  The advice usually is to feel your feelings, not to file them away in a box with a 'do not open' notice on it.   I'm finding that forcing myself to feel the complete opposite of what I actually feel is very stressful and I can go to pieces when I get a break from him.  The good thing is that it is working for him.  He comes home hyper and goes back to school calm the next day.  And he appreciates what I am doing -  he returned from a school trip with a present for me recently.  His own idea.  

I think he's on my side.

For more help on how to school your feelings during a meltdown, check out this link:

http://www.stressfreekids.com/9771/kids-temper-tantrums-and-meltdowns


24 comments:

  1. I haven't had to learn the things you, in your family, have had to learn. But in mine - I've found things work for a while. Then, suddenly, almost whatever it is and whatever it's been devised to address - it stops working and you have to put your thinking cap on and come up with another new approach.

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    1. That's very true, especially when it comes to my son!

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  2. I'm middle of the road. There's a surprise. I want to be consensus, but there's a streak of authoritarian in me.

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    1. Well I know some parents who I would describe as authoritarian, but it works for them and for their kids :)

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  3. Yes, I totally agree with doing things in agreement. I have a post half written that touches on this too so when you see it you'll know I'm not copying!

    Does leaving a light on help him at all...or is that a silly question?!

    xx Jazzy

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    1. Oh I look forward to seeing your take on this too :) And yes a light on does help, the overhead bedroom light is left on every night until my evening ends and I switch it off xx

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  4. I like how you parent your son. You are right about remaining calm when inside you feel like screaming... it is so important to keep that smile on your face and *show* him that all is okay! I used to have to do this with Nick... my silent mantra was "smile, smile, smile" hee hee. Another mantra is "don't sweat the small stuff!". I don't think that I fit into any of your categories! I see myself as a guide for my son and am mindful about providing opportunities for him to think for himself and make his own decisions... from a developmental perspective of course. Then again I could just be a middle of the road mum! :)

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    1. I'm sure there are plenty more styles of parenting, but I'd got to the stage that I just wanted to publish and I was hoping everyone who read it would help to finish it off :)

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  5. There is a lot of research to show that forcing your own feelings aside is bad for your health but I can see why you're doing it and you are wonderful to do so.

    I am a consensus parent and I often wonder if that's a good thing. I wasn't brought up that way so I don't know how they will turn out! However it seems respectful and like you, I think generally they do their best. In the end I love them unconditionally.

    You're a great mum :-)

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  6. I think parenting a kid with Aspergers might be one of those situations where you have to do things differently. I could fill a library with the advice I've been given that doesn't work (especially over the issue of sleep actually). It seems to work for other kids (including my other kid) but it does nothing for my Asperger's kid. This thing about being scared to go to sleep, for example - most kids will eventually succumb to drowsiness and forget about it. So it doesn't usually last that long. An Asperger's kid though is often completely and utterly strung out about it, totally not drowsy, not comforted and in no way going to forget about it. My son could and did stay up until the early hours for years, wearing us all out in the process. I'm afraid we only got a grip when a paediatrician eventually prescribed melatonin for him.

    I found a consensual style of parenting was the only thing that worked for me - I don't know about your son, but mine is so damn bright that he could run rings round any attempt to lay down the law unilaterally! If you make a rule you have to be absolutely certain that it is clear and consistent, and has no awkward grey areas that will end you up in an argument. So yes, we would have agreed about extra time downstairs, and then upstairs, but we'd have to make it clear exactly how long we were reading for - not to the end of the book or whatever - and we'd have to stick to the rule through thick and thin, even if Auntie Mary rang up in the middle for a chat. In fact, now he's older, consensus is probably even more important.

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    1. Oh this EXACTLY how things are here, my son is also able to runs rings around me and even sleep-deprived can find holes in every arrangement and every plan. I don't have the severe lack of sleep that other parents have to live with, but I am chronically sleep-deprived and it certainly doesn't help.

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  7. This is very topical for me - as I'm currently being made to feel that I'm 'giving in' to my son. I'm definitely in the same category as you, and need to be more confident that I'm doing what works not only for him but for my other 3 children too. Great post :-)

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    1. It's definitely not always 'giving in'. That example I gave about the attic: he wasn't messing, I could hear the panic in his voice. At that moment, going up to the attic was THE most important thing in his life :)

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  8. another great piece,in my daily work life i work with teenagers who have fairly serious behavioural issues and all the methods that you use here are similar to the way we work with young people. we, as you work with them as we find them and constantly move and change according to their needs, well done you, and keeping calm aint easy.
    ado

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    1. Thank you, I really appreciate you taking the time to comment.

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  9. I've changed my parenting style a lot and have gradually become very calm when dealing with my children, particularly my son. I learnt that being too emotional just hyped them up and was a sure way to meltdown (plus ambiguous language that he didn't understand). I don't always get it right and sometimes slip into 'ordinary parent' mode and I can guarantee we will have problems. But the most important thing I've learnt is how dripfeeding information and negotiation is the key to getting on with my son. He rarely responds to direct demands unless he understands why and what is in it for him. This can take ages. Unfortunately the professionals don't understand what Im doing (including the educational psychologist). They mistake my calmness as me being controlled by my son and sometimes they even interfere and tell my son he is being controlling. They don't get that sometimes I have to let things go; there are days my son will respond and days when he wont and then there are the days when he is hyper and near to meltdown. This all affects how I parent. Deb PS it sounds like you're doing great job and so is your son too. Well done to him for thinking of you and giving you a present.

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    1. Thanks Deb and I can identify with much of this, especially the need to tell him "what's in it for him". There are some people who can give my son direct demands - male figures who he admires and also one of the female therapists on his team, she has a matter of fact approach that I just can't seem to emulate. Thanks for your lovely complement too :)

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  10. Oh I'm so with you on this - I'm a consensus parent. Even before I had my ASD girl, that is the way I would have gone. I dislike confrontation and feel that getting to the point of screaming at children is rarely helpful anyway - but obvs I appreciate they can't do whatever they want! It's all about being flexible and understanding the possible outcomes and where you want to get to. Sounds like you have it sussed. The longer you do it, the easier it is!!

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    1. I hate confrontation too, and I hated being told what to do as a child, so I think consensus parenting would always have been my choice too x

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  11. I don't know if it is ok to respond to this as an adult that HAS Aspergers Syndrome. I read this kind of post and think about how kids don't grow out of autism and they turn into autistic adults. I think the greatest gift anyone can give us (those on the spectrum) is the disciplined environment that will prepare us for as much independence and real world experience as possible. I look back at my childhood and think about what Dr. Temple Grandin says about hers also. I agree with Dr. Grandin when she says it is very important that kids with autism are given rules to follow, given structure, expected to use manners, and are worked with on this basis. I can say that I would have LOVED to have a mum sit on the floor for an hour if I was fearful, but that would not have helped me develop self-discipline and the confidence that I could overcome my own fears. As an adult, I am told 100% of the time that I don't appear to be on the spectrum. This is because I was reared in a very strict private school, strict family, and I expected to use excellent manners, self-calming and self-discipline. I did excellent at school because I had to figure out what skills would work for me. I am thankful to have developed those skills as I use them every day as an adult. There are some things that no one on the spectrum will ever cope well with regardless of the parenting they have behind them. You can't make everything better for us. But you can give us the tools to survive a world that is not designed for us.

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    1. Thank you so much for your comment. I would LOVE more adults with Aspergers or Autism to respond to my blogs, as despite all the books available now, I still feel as though as my parenting is an on-going experiment! I do have some basic rules, but they agreed rather than just coming form me, and I think I have convinced him of the importance of manners. I'm not sure why my son behaves so badly (in the eyes of the school) and if I can find out, I will work with him to make sure that he can overcome whatever it is that is REALLY bothering him there,

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  12. Well done you on facing the challenges and questioning your approaches too.
    I don't have your challenges and verry wildly in parenting styles. I am probably naturally a bit laissez-faire and then my husband is probably authoritarian by nature so we come down in a mix that works for us. That is all you can do really.
    Thanks for offering me a glimpse into how you are getting on.

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    1. I don't think you can put anyone's parenting completely in a box, but this post has certainly got people talking!

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