Sunday, August 25, 2013

I have a dream

And I thought I couldn't do dreams any more.

I thought I had to accept my life the way it is now.  Just get on with it.  But that left me feeling so low.

But perhaps I was wrong.

More than anything I need a break.  Staycations help, but I'm still at home looking at all the things that need doing.  I need to get away, but how?  Going on holiday just seems unrealistic right now.

Travelling by ferry is not possible at the moment, and I cannot risk Smiley's wheelchair getting damaged by careless handling at the airport.  I'm also always so stressed about going anywhere new with my daughter in case it is not suitable.  Wheelchair-friendly often mean ramps and support bars, not the high-tech equipment that my daughter needs.

So no holidays.

But my son will grow up and become independent in a few years.  So it will be just myself and Smiley. What will we do?  How will we pass the time?  Once it's just the two of us, there must be a way of making up for all those years of missed holidays, and friends and family have shown that independent travel is possible.

Some way of travelling that means that I can bring everything with me that Smiley needs.  If I want that, someone else must have thought of it already.

And they have!

I found a company in the UK that converts caravans - like this one - to provide everything that we need, from a wet room for her shower, to ceiling hoists to lift her from bed to wheelchair and back again - I don't even have that at home!

With thanks to the Swift Group

I think she would love it.  There's so much that we could do, so many places we could go.  I got a taste this weekend when we attended a concert in Dublin for special children.



She absolutely loved it!  And head-danced non-stop through the entire thing.  I joined her of course :)



Perhaps one day I will make it to Electric Picnic or Bestival after all....


26 comments:

  1. I so hope you get your caravan xxxx

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  2. I do hope you get one! What a wonderfully, thoughtful company! xx

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    1. It's a plan, something to hold on to and look forward to, at least xx

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  3. Oh I truly hope this dream comes true, it would be amazing!

    xx Jazzy

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  4. It's great you had fun at the concert, and amzing how smart people make these great accommodations for your child. I do know my institution ward is "wheelchair friendly", but I doubt anyone in a wheelchair could really navigate around here.

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    1. That's exactly what I mean - and there's wheelchairs and then there's extra large wheelchairs for the severely disabled like my daughter :)

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  5. Wow how cool are they! I hope one day you get one, cos that would open up your horizons and every day would be an adventure then x

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  6. Oh wow, how wonderful it would be to travel around in such an amazing caravan. The places that you both could go. What a fabulous goal to aim for. xx

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  7. That looks brilliant! So much to look forward to although I also like the looking back to Smiley head-dancing at the concert!

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    1. The concert was definitely one of the highlights of the summer - I was almost in tears cos she was so happy - which is what I want for her all the time, despite all the Government cutbacks x

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  8. If you get your caravan, head to Scotland and we can meet up!!

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  9. Brilliant, happy to hear you were both happy and that you have a dream that I hope becomes reality! x

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  10. Such a good idea, there really should be a lot more companies catering for disabled people, wheelchairs etc, but even though they say they are wheelchair friendly, we all know they're not really.

    CJ x

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  11. fantastic idea - hope you get one. x

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