Today

At one point today I lost the ability to speak. At least in recognisable English. I was trying to talk on the phone at the time to a potential babysitter (hurrah!). I was also burning the latest batch of Brownies (aka reinforcers), looking for chocolate buttons for Smiley, attempting sign language with my son and peering over Angel's shoulder to help with her latest Econometrics assignment. So naturally an assortment of jumbled up words came out together.

BurChocBrentSigmaYes or something like that.

It was a day when I really needed to be a Duracell Bunny.

You may remember that I have decided to desert my station at the kitchen sink, abandon the dishes and go out and fight for my disabled daughter's right to adult services in September. Of course she doesn't actually have a constitutional or legal right to them, but I'm working on that too. Today the ground work started to pay off, with phone calls and emails from representatives from three political parties. All of whom have promised to ask questions in the Irish Parliament for me, on behalf of my daughter and other school leavers.

Result.

Well it's a good start anyway. I'm not stupid enough to think that I'm done already.

Today there was also housework, cooking, the usual 5.30am start, helping Smiley with her toileting, feeding and entertainment, attempting to explain the whole crisis in adult services in one succinct email, making campaign notes, trying to encourage more people to get involved (PLEASE?), talking to my son about his worries, talking to my daughter about hers, collecting him from school, supervising the homework (helped by the Brownies, even though they had that little mishap), oh and an hour of that bendy shit yoga too!

Dinner was spent on here, rewinding the same ten minute Teletubby clip for Smiley, resetting the water plants reminder on my phone every ten minutes, and discussing something (what was it?) about my son's latest game every time he popped in the kitchen.

And I still have the bedtime routines to do. But it felt like a productive day, at least if don't look too hard at the kitchen sink.



To read Parts 1 and 2 of this series, click here.




6 comments:

  1. Eek.... what a day! I feel torn in a few directions at the moment too and am feeling a tad stressed. In comparison my life is a doddle! Well done on keeping up the pressure and getting some results. Now let's hope the TD's get results too. Fingers crossed :) xx

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    1. Your life is definitely not a doddle! I really hope that some of your current stresses will ease soon xx

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  2. Sending you good vibes and best wishes for lots of luck, courage and strength for the good fight. Looking forward to hearing good news about services for Smiley and other school leavers. xxx

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    1. I really hope so and thanks for the good wishes xxx

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  3. Oh my goodness, what an 'all'............... I hope you're able to secure a place for Smiley, for her sake, and for your own. She should have a constitutional/legal right to adult services, it's appalling that you are having to fight so hard for her, on top of EVERYTHING else :( x

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    1. Interest in special needs and disabilities seems to fall off a cliff when your once cute child becomes a young adult sadly x

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