A FIVE year wait for adult disability services? (Part 5)

That is what my daughter may be facing.

As I wrote previously here, here, here and here, it is impossible to say who is at fault, but clearly there is a lack of interest in this area and no adequate planning for school leavers with disabilities and special needs.

The letter from the Irish Health Service said it all:

The organisations "are continuing to work closely together to provide whatever service is feasible in the short term and are developing a medium term plan in relation to premises and providing a 5 day service."

Apparently medium term can mean anything from one to five years.

I am exploring other options, including begging for an extra year in school and taking control of my daughter's services myself, but neither are straightforward, as both the school and other services are full too.

So it is possible that I will have two teenagers with very different needs at home full time from the end of June, for the foreseeable future and with very little help. And I have asked for more. I do not think that this situation will be good for any of us.







13 comments:

  1. The HSE is such a joke and the government is more concerned with raising the wages of public servants rather than addressing the needs of the most vulnerable in our society. Shame on them.I hope you get the proper services you need soon.

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    1. I won't be resting until she gets something. Thanks for your support x

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  2. So sorry to hear that you have still not received confirmation that the services your daughter requires will be available in September.

    On a positive note, I am very much liking your new blog look!xx

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  3. I can't imagine the stress and strain of this on you. I hope that you find a somewhere that suits you and your daughter. It breaks my heart that we don't have the services to help to cherish and develop those who need it. I worked in adult services in the HSE before teaching and all of the stories were of parents who had to fight tooth and nail for somewhere for their children to be cared for and to learn.

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    1. Sadly the situation has not changed. Thanks so much for your interest x

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  4. I'm so sorry to hear about this - stress that you don't need. I'm glad you have this place to let off steam.

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  5. Ah Candi I'm so sorry, I hate this for you and the kids. It really is a disgrace!

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  6. You'll notice that I've had a bif catch up on your blog tonight. I've been avaoiding you, I'm sorry. It was because when I read this post almost two weeks ago, I didn't know what to say so I didn't leave a comment. I felt guilty about not leaving you some words of support but I just didn't have anything positive to say - the situation sounds so desperate. I know you'll find a solution and I know you will survuve because you are a survivor. But why should you have to? I just felt so sad for you.

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    1. Never feel that you have to leave a comment - after all, you make a huge effort to write supportive comments all the time, more than most, and I appreciate every single one.

      Posts like this are written partly for me to let off steam, partly to raise awareness of the issues and partly just to tell our story. I'm just glad that people read them. I don't want anyone to feel guilty for not leaving a comment xxx

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