On being a small person and trying to change things

I wasn't going to do any reasons to be cheerful this week. There's been good days, but you've probably seen the photos of those. There's been bad days, but the less said about them the better, and there's been some dull days too, and what can I possibly say about them?


The sun has been shining and I'm making progress on the garden even while the the pall of exam stress hangs heavily over the house. Which is why I make sure to get out of it every day.


On the Saturday I went to a First Holy Communion Party with Smiley. Lots of cake was eaten and reminiscing about the PACUB days when a small group of Mums took on the Government in 2009 over proposed child benefit cuts, and probably made a difference too. It was one of the best summers of the past ten years, and whenever I wonder if the endless battling for my daughter and son is ever going to get them what they need, I remember how a small number of people really can change things (and apologies for another Lord of the Ring reference for those who are not fans, they just pop into my head, I really can't help it...)


And I remembered it again on the Monday when I attended a seminar on personal budgets for people with disabilities, to help me to understand better what Smiley and I will face in the future. I even managed to ask a question about the impact of changes to adult services on those with severe disabilities. And the new Minister for Disabilities listened, which was a start. Speaking out in public is not something I am comfortable with - I was shaking so much that I couldn't stand up when they passed the microphone to me. But perhaps it will get easier if I keep doing it. I'll probably have to. Someone needs to, and it looks like that person will have to be me.

A couple of other reasons to be cheerful:


  • Smiley feeding herself, and retrieving her pink toy from the pocket of her buggy. Both are difficult for her to do.



  • Fitting in two runs and a trip to the gym, when I managed the whole circuit for the first time in weeks (it's getting really hard now, but I'm seeing real improvements).


Hope you had a good week xx


8 comments:

  1. Your garden is looking nice - a real haven to retreat to. I'm so impressed with your unending efforts to advocate for people who cannot fight for themselves. I believe your efforts have helped in ways you wouldn't even be aware of like people quietly reading your blog and taking note or discussing the issues with others. It all helps to disseminate information. Combining this with being one of the known important players in this field means you personally are definitely making big changes in the world - even if they seem slow and you despair that they might not come quickly enough fro your own children. Well done on the fitness front and best till last - Smiley doing things for herself is wonderful. Lots of love xxx

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    1. Thank you and thank you so much for taking an interest for so long xxx

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  2. It's so good getting the garden sorted! Glad you are finding enough reasons to be cheerful

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    1. I think I'd be doing reasons to be cheerful on my own even if everyone else stopped! Thanks again for helping to keep it going x

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  3. The weather here has been great too. Nice to get out and enjoy a sunny day.
    We did transition many moons ago, but what we got in adult services was useless.
    So we went on a battle
    What we have is good (ish) for just now, but in 6 years, the budget has stayed the same

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    1. It does scare me that I may be starting an ongoing battle, just as I feel like I should be over the battling stage

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  4. Keep going forward with those fights, you're doing a wonderful and necessary thing in going to these talks and getting your voice heard. I hope this week brings more reasons to be cheerful x

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